Heidi Edwards
President & Founder: Sisters’ Hope Foundation for HDLS / Adult-Onset Leukoencephalopathy with Axonal Spheroids and Pigmented Glia (ALSP), ALSP and Rare Disease Advocate, Speaker, ALSP Expert
- Report this post
Live Cam Link: https://zurl.co/mn7D#LightthenightforALSP #NiagaraFalls #WhatawaytoendALSPAwarenessMonth
1
To view or add a comment, sign in
More Relevant Posts
-
Heidi Edwards
President & Founder: Sisters’ Hope Foundation for HDLS / Adult-Onset Leukoencephalopathy with Axonal Spheroids and Pigmented Glia (ALSP), ALSP and Rare Disease Advocate, Speaker, ALSP Expert
- Report this post
#JuneFlowers #Hydrangea #Inspiration #Hope #Climb
2
Like CommentTo view or add a comment, sign in
-
Heidi Edwards
President & Founder: Sisters’ Hope Foundation for HDLS / Adult-Onset Leukoencephalopathy with Axonal Spheroids and Pigmented Glia (ALSP), ALSP and Rare Disease Advocate, Speaker, ALSP Expert
- Report this post
Celebrate your birthday with Sisters' Hope Foundation and create a Facebook Fundraiser! Contact us if you need assistance!#SpreadAwareness #Donate #HappyBirthday
See AlsoCanadian Hemochromatosis Society sur LinkedIn : LIVE NOW! Niagara Falls - The Falls CamCanadian Hemochromatosis Society on LinkedIn: In honour of World Hemochromatosis Awareness Week, the Nova Scotia…Talisa King on LinkedIn: LIVE NOW! Niagara Falls - The Falls CamTalisa King on LinkedIn: https://lnkd.in/e5mQqUnNLike CommentTo view or add a comment, sign in
-
Heidi Edwards
President & Founder: Sisters’ Hope Foundation for HDLS / Adult-Onset Leukoencephalopathy with Axonal Spheroids and Pigmented Glia (ALSP), ALSP and Rare Disease Advocate, Speaker, ALSP Expert
- Report this post
Tag a caregiver who has made a difference! #Engage #SharetheLove
1
Like CommentTo view or add a comment, sign in
-
Heidi Edwards
President & Founder: Sisters’ Hope Foundation for HDLS / Adult-Onset Leukoencephalopathy with Axonal Spheroids and Pigmented Glia (ALSP), ALSP and Rare Disease Advocate, Speaker, ALSP Expert
- Report this post
Join us in welcoming our new Marketing Manager, Jamie LaFleur! Jamie brings a creative flair with a medical background to the Sisters’ Hope Foundation team. Check out her latest original design for our upcoming move-a-thon - Sunshine & Sneakers. Don't you just love this bright, sunshiny design! We sure do! Register today to participate! https://zurl.co/VxAy #WelcomeJamie #Sunshine &Sneakers
2
Like CommentTo view or add a comment, sign in
-
Heidi Edwards
President & Founder: Sisters’ Hope Foundation for HDLS / Adult-Onset Leukoencephalopathy with Axonal Spheroids and Pigmented Glia (ALSP), ALSP and Rare Disease Advocate, Speaker, ALSP Expert
- Report this post
Erin Sullivan, Executive Director, spoke with community Occupational Therapists today, educating them about ALSP. The presentation was so well received, she has already been invited back to speak with community Speech Therapists next month! Well done, Erin. Keep spreading the word!#ALSPAwareness #OT #Spreadtheword
5
Like CommentTo view or add a comment, sign in
-
Heidi Edwards
President & Founder: Sisters’ Hope Foundation for HDLS / Adult-Onset Leukoencephalopathy with Axonal Spheroids and Pigmented Glia (ALSP), ALSP and Rare Disease Advocate, Speaker, ALSP Expert
- Report this post
Support Sisters' Hope Foundation and shop our Amazon Wishlist. We are gearing up for Volunteer Day and will be sending out our Doctor Tool Kit to numerous neurologists to spread the word of ALSP. https://zurl.co/eudj #VolunteerDay #AmazonWishlist #Support
Like CommentTo view or add a comment, sign in
-
Heidi Edwards
President & Founder: Sisters’ Hope Foundation for HDLS / Adult-Onset Leukoencephalopathy with Axonal Spheroids and Pigmented Glia (ALSP), ALSP and Rare Disease Advocate, Speaker, ALSP Expert
- Report this post
Register today for Biomarkers 102, a follow up to Biomarkers 101. Dr. Fanny Mochel answers ALSP Community member's questions about biomarkers. https://zurl.co/eOmF #Biomarkers102 #Getyourquestionsanswered #Registertoday
2
Like CommentTo view or add a comment, sign in
-
Heidi Edwards
President & Founder: Sisters’ Hope Foundation for HDLS / Adult-Onset Leukoencephalopathy with Axonal Spheroids and Pigmented Glia (ALSP), ALSP and Rare Disease Advocate, Speaker, ALSP Expert
- Report this post
#WordoftheWeek #Knowledgeispower #CSF1R #Mutation
2
Like CommentTo view or add a comment, sign in
-
Heidi Edwards
President & Founder: Sisters’ Hope Foundation for HDLS / Adult-Onset Leukoencephalopathy with Axonal Spheroids and Pigmented Glia (ALSP), ALSP and Rare Disease Advocate, Speaker, ALSP Expert
- Report this post
Introducing The Blog, by Sisters' Hope Foundation. Each week, a new blog will be posted. During the month of June, we will run a series on safety in honor of National Safety Month. Check out blog post #1: Home Safety and Security. https://zurl.co/ULOe #NationalSafetyMonth #Blog1
1
Like CommentTo view or add a comment, sign in
-
Heidi Edwards
President & Founder: Sisters’ Hope Foundation for HDLS / Adult-Onset Leukoencephalopathy with Axonal Spheroids and Pigmented Glia (ALSP), ALSP and Rare Disease Advocate, Speaker, ALSP Expert
- Report this post
Support Sisters' Hope Foundation and shop our Amazon Wishlist. We are gearing up for Volunteer Day and will be sending out our Doctor Tool Kit to numerous neurologists to spread the word of ALSP.https://zurl.co/eudj#VolunteerDay #AmazonWishlist #Support
Like CommentTo view or add a comment, sign in
4,803 followers
- 848 Posts
View Profile
Follow